Tuesday, August 31, 2010

A special request and a chance to do a good deed.

The following email is from a former colleague of S.  As you'll see, his daughter has a horrible disease and it seems that up until midnight tonight we all can do just a little bit to help.  If you have a minute, please take the time to vote.  Thank you so much!!
 "Hi All,

 I have a small favor to ask of all of you. As some of you know, my daughter, M is very ill. She's 14 years old and was diagnosed with Juvenile Dermatomyositis when she was 12. It is a rare, incurable autoimmune disease that attacks the skin, muscles and vascular system.

M has had 3 surgeries, almost 100 infusions, and over 75 chemo shots. She takes 32 pills a day, some of which are anti-rejection drugs and there is no end in sight for her. Through all of this, she has a strong spirit and a great sense of humor. CureJM made an informational movie during the Austin Marathon last year about juvenile myositis. To view it, go to http://www.youtube.com/watch?v=Ovp4y3JHhb4&NR=1. M opens up the movie. She's the red head at the beginning.

CureJM is a 501(c)(3) all volunteer organization whose sole mission is to find a cure for Juvenile Myositis (http://www.curejm.org). I am devoted to doing all that I can to make sure that no other child has to suffer from this debilitating disease. I have devoted my time to grant writing and raising funds for research. I submitted a grant to the Pepsi Refresh Challenge for $250K and we are currently in 4th place. We need to be in the top 2 to get the funds. People can vote 3 times a day by:
1. Text 100850 to 73774 (Pepsi) *Standard text messaging rates apply.
3. Vote directly from the Pepsi site for our entire "Kids to Win" team at:http://www.refresheverything/makejmamemory/
 You can vote all 3 ways and I need you to vote every day in the month of August. VOTING ENDS TONIGHT AT MIDNIGHT EST!! Please share this information with anyone and encourage folks to vote. Please help me in my cause to make sure that no other child suffers from this debilitating disease.


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